Life here has changed!

[Ridge Runner]

On March 8th, My 10 YO daughter was diagnosed with type 1 diabetes. she will be insulin dependant either for life or until there is a cure, so all my plans for my future are on hold till we get this thing under control and get settled into our lives the way it has to be to help her lead a happy healthy life.
The main reason for this post is to let anyone that I made a commitment too know that it is on hold for awhile (so kirby, will send you my brass to form when time and funds allow) Not sure if I committed anything else to anyone or not, things have been a blur for the last month.
also anyone with young children, if you see any change in they're routine (drinking excessively, going to the bathroom more than normal, always tired) Please, Please get them to the Dr., juvenile diabetes strikes 1 in 600 children in this country, and the initial treatments are hard on young children, (and parents take it worse) If we had any idea and took her to the ER 4 days sooner she wouldn't have had to endure nearly as much, the outcome wouldn't have changed but the 3 days of hell in the ICU at university of va hospital would not have been nessacary.
I hope noone has to endure what my daughter has in the last month!
RR

 

[Coyboy]

RR, God bless your family during this dificult time. I hope things get better for your family soon.

 

[MN Hunter]

Please do not be so hard on yourself. You did what you knew to do at the time - now your taking it one step further and trying to educate others. Our thoughts and prayers are with you and your family.


Romans 8:28

 

[Derek M.]

Be sure to ask the doctor about putting her on a pump. This really improves their A1c. There is more freedom with food choices. When you are monitoring her blood sugar, and she is low, you will be better off giving her fruits for sugar and not cookies and candy. Bananas have a high glycemic index.

Arm your pantry with good fruits. Buy them often to keep them fresh but only a couple of days worth at a time. I recommend organic.

You will have to keep blood sugar records daily, usually at least 3x/day. You will also be given glucagon in case her sugar gets too low.

Good candies to use when sugar is low are Smarties and Sweet tarts. These candies are hard, and seem to last a long time. They are small and you can easily add how many carbs she will need based on her blood sugar number. The reason to use candy is at least you can tell how many carbs they are getting. Candy is more convenient when you are out and about. Fruit is better at home.

Be on the watch for her waking up in the night with a form of seizure due to a significant drop in sugar. The pupils will dilate and she may act as if she doesn't know where she is or what is going on. They usually stand and look like they are doing a jerking motion with all 4 limbs. Many times kids will make a "wooo-ing" sound with their mouth as if they are in a panic. They are usually scared if they have any recollection of what is happening.

This usually scares the **** out of parents. The sugar is low, get right on it.

Best advice in the world, get her on a pump.

Good luck.

 

[Buffalobob]

There are a lot of rewards of being a parent and lots of pain at times.

 

[gbp]

Things that affect our children always hurt the most. I am sorry to hear this and my prayers go out to you and your family.
all this stuff is just that, STUFF. what's really important is family

 

[royinidaho]

Ridge Runner,

Sorry to hear that news........

I'm not able to come up with the kinds of words that would seem appropriate.......

However, having faith in the institution of the famiy, the blessings that go with and what your thread starter says about you, with a bit of power from above you'll find your family will become closer, stronger and realize things that you never would have otherwise experienced.

Also the technology guys are always coming up with things to help.
See this: Spotlight: New method may end pain of diabetes tests: FEB 09, Currents: News: LANL

If there were a way to trade her's for mine, I'd do it. Really.......

 

[shimoda]

My thoughts and prayers are with you and your family.

Sam

 

[Joel Russo]

James~

Our thoughts and prayers are with you and your family.
Set this "stuff" aside, and take care if those that really matter in life.

 

[JEREMY logan]

My wife and i will be praying for your family . I have a little girl she will be 1yr old april the 29th as i read your post i thought about my child and how i would feel so my heart goes out to you and your family . I want to share something with you that my family has been through my sister in 2000 had a brain tumour taken out it came back in 2002 this time it was cancer the doctors said her success rate was (4%) we were devistated as any family would be however, we (the church) begain to pray she had three more operations after that,each time she would have the operations she would have 49 staples in her head when i researched her type of tumour on the internet people that had family members with the same kind of tumour lasted 6 months to 1 1/2 years . My sister is still with us and it is 2009 there is nothing to hard for god!!!

 

[BigPig069]

Our Thoughts and Prayers are with you and your family.

 

[ss7mm]

RR:

Our thought and prayers go out for you and your family. Hang it there, you'll all make it just fine.

Young kids are tough little critters and they will amaze you at how they can handle things like this if their parents are strong, supportive and stay positive. I know it's hard for you guys to stay positive at a time like this, but she needs it.

Diet and monitoring the situation properly can make a huge difference. I've seen it in a couple of cases of diabetes that hit close to home.

 

[ejones338]

As a family man and a father of two, son nine, daughter three, I cannot express how sincerely heartfelt my sympathies towards your family are right now. You all will be included in my prayers.

I personally know eight people living with diabetes and can assure you that it is NOT an end all disease. Though it does require awareness and a change in lifestyle, and there will be some struggles.

Anytime something like this enters our lives it is truly a shock and can be overwhelming, but in the end it makes us realize what we have and brings family closer together.

GOD BLESS. And let your daughter know that a lot of people have her in their prayers.

 

[jmason]

Although I lack the creativity to extend my thoughts as warmly as others have. I just want you to know that my thoughts and prayers are with your daughter and family as well. I am also a father of two little girls and to some small degree can appreciate how you must feel. Just know it will, and does always get better.