HELP - How to get the MAYO Clinic review your case.

[Coyote Shadow Tracker]

Hello all.
I know that a lot of our LRH friends have been following my health issues especially with my spinal cord surgeries and the sever 24/7/365 pain. I have had (5) Spinal Cord Operations in the past six years. Have ben to Orthopedic Surgeons, several Pain Specialists, and a Neurosurgeon. Have had three SCS did not work at all.
Every operation/procedure made the pain worse. I know of some other persons with this type of pain that did not go on with living. I have a strong FAITH with my Jesus and a STRONGER FAITH with Jill to ever leave. no matter how bad it gets. Trying to get the MAYO Clinic involved. I did have some insurance and I am a VietNam Era Vet
I will finish this story later.

Does anyone Khow contacts at the Mayo Clinic and can get me a foot in the door.
I am ready for my next group that We contribute to help veterans. 22Kill. I have no place left to go.
Semper Fi
Len & Jill

 

[Darryle]

Have you reached out to Til Valhalla? They are veteran operated and veteran, first responder focused, surely they know someone who can get you in touch with the right person or persons?

Len, I hope they can get you a solution that gives you relief and a better quality of life with less pain.

 

[fordy]

Gday coyote shadow tracker
I'm no help sorry but didn't realise the extent of your condition


I just hope you find a person who puts / gets you in the right direction & all moves forward

I wish you the best
Cheers Fordy

 

[AkleyFan]

Not sure if you need some sort of referral, but your Doc should be able to get you connected with someone there. Below are the clinic numbers off the web. I'll reachout to my neurosurgeon and see if he has a direct contact. In the meantime, call the Minnesota clinic.

Mayo runs the Epic EMR system - I have a contact in their IT department - I'll check with them and PM you any info.

Minnesota

• Mayo Clinic Adult Neurology and Neurosurgery
• 200 First St. SW
  Floor 8
  Rochester, MN 55905
• Phone: 507-284-2111

Arizona

• Mayo Clinic Neurosurgery
• 5779 E. Mayo Blvd.
  Phoenix, AZ 85054
• Phone: 480-301-8000

Florida

• Mayo Clinic Neurology and Neurosurgery
• 4500 San Pablo Road
  Jacksonville, FL 32224
• Phone: 904-953-0856

 

[Mrvmax]

I can't help you with Mayo but I'll be praying for you.

 

[Lee7588]

Prayers are with you.

 

[Coyote Shadow Tracker]

Not sure if you need some sort of referral, but your Doc should be able to get you connected with someone there. Below are the clinic numbers off the web. I'll reachout to my neurosurgeon and see if he has a direct contact. In the meantime, call the Minnesota clinic.

Mayo runs the Epic EMR system - I have a contact in their IT department - I'll check with them and PM you any info.

Minnesota

• Mayo Clinic Adult Neurology and Neurosurgery
• 200 First St. SW
  Floor 8
  Rochester, MN 55905
• Phone: 507-284-2111

Arizona

• Mayo Clinic Neurosurgery
• 5779 E. Mayo Blvd.
  Phoenix, AZ 85054
• Phone: 480-301-8000

Florida

• Mayo Clinic Neurology and Neurosurgery
• 4500 San Pablo Road
  Jacksonville, FL 32224
• Phone: 904-953-0856

Thanks much. I need to start calling and sending letters out. Just wanted to see if anyone has had experience with the mayo Clinic.

 

[Wolf76]

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This system is entirely different than the other SCSs out there. I'd look hard at giving this a try. Wish I could help more Wythe the Mayo Clinic.

 

[d11r529]

You may want to try the Healing Rooms, there are 4 in Georgia and you can find the one closest to you by going to healingrooms.com. Blessings

 

[Arcola]

This info may be outdated but when I was struggling with some health issues, I simply called the Mayo. They sent me a very detailed application, which started a lengthy review process.

I did not end up receiving treatment there, but it is worth the call and application to know that you tried every avenue to help yourself.

As noted above, I would certainly also look into any of the privately funded veteran programs that are out there. There are many.

 

[akdad]

I believe you can call them directly and then they set up a phone interview to see if you can get in. I'm sure it's different with every type of treatment. I do know lead time can be quite long as well. I can get some more information for you today

 

[akdad]

Up date to the above. You can fill out an online application and they get back to you or a better way would be to have you doctor refer you. I would not expect it to be a fast process however. Based off experience in my family at least.

 

[Lee7588]

Up date to the above. You can fill out an online application and they get back to you or a better way would be to have you doctor refer you. I would not expect it to be a fast process however. Based off experience in my family at least.

Maybe do both to cover all aspects

 

[Rosebud]

There are times when surgery is the only option. But, surgery pain is harder to treat than non-surgical pain. I know I'm just a ray of sunshine about this. I also have neck and back issues. Plate and six screws in my neck and stenosis in all my lumbar vert. Plus transverse fracture of L1, healed on its own, hurt so bad in other places I didn't know it was fractured. I feel for you, as I know what you are experiencing. I pray you can find some relief. Do you have fusions? That may be an option.